The Save Sight Registries opens up the possibility of tracking systemic and long-term morbidity and mortality associated with new treatments of ophthalmic diseases by creating an information database from a network of different treatment centres across the world.
It is a web-based data collection tool and RANZCO-approved CPD audit activity that incorporates modules for effective clinical monitoring of the treatment of specific ophthalmic diseases.
Currently, the Save Sight Registries incorporates modules from the Fight Retinal Blindness! Project and Fight Corneal Blindness! Project, enabling clinicians to monitor patients undergoing treatment for neovascular age-related macular degeneration and diabetic macular oedema, and keratoconus respectively.
Each module of the web-based data collection tool developed for the Save Sight Registries allows for the collection of anomymised patient data obtained from the first consultation and subsequent follow-up or treatment-only visits.
Disease- and patient-specific parameters such as disease activity, treatments used, and visual acuity at each visit, are recorded longitudinally. These clinically relevant data can be entered into the registry in less than 30 seconds for the baseline visit, and less than 15 seconds for follow-up visits.
Via this tool, clinicians are able to track outcomes of individualised treatment regimens for specific eye conditions, and represent these data in a simple graphical format to demonstrate the natural history of treated or untreated disease.
Visual representations of disease progression can also be utilised as a patient educational tool that could facilitate for patient-centred care and increased treatment adherence.
Access to the registries is web-based, enabling flexibility in location of recording and accessing of treatment data. By providing easy access to generally difficult-to-obtain data, clinicians are able to rapidly demonstrate the response to, and overall outcomes of the treatments administered, allowing for the responsive optimisation of treatment strategies for each individual patient.
This system is currently being used in public and private clinics across Australia, New Zealand, and Switzerland, with expansion into other countries in South East Asia and Europe.